and engage in both synchronous (e.g. video-conferencing) and asynchronous (e.g. secure
messaging) virtual visits with their healthcare providers. Youth participants used a
smartphone application (app) to connect to the CHR. The intervention is designed to
facilitate better care and engagement between the patient and their care team.
Collaborative Health Record (CHR)
TELEPROM-Y app
Measures
Measures included a demographic questionnaire, the Community Integration Questionnaire [10], Lehman’s Quality of Life [11], EQ-5D, health and social services utilization, and Likert scales assessing perception of technology, a researcher-developed
questionnaire that inquires about participants’ attitudes and opinions of the smartphone
provided, provided data plan, and the CHR. Common qualitative items included
feedback from participants on what they do and do not like about the technology, as
well as suggestions for improvement on ethical principles such as autonomy, privacy
and beneficence. A thematic analysis [12] using an ethnographic [13] method of
analysis will be used to observe the broader social and cultural contexts surrounding
individual experiences as well as the impact on staff/care providers and how the
intervention influenced their practice.
212
C. Forchuk et al.
messaging) virtual visits with their healthcare providers. Youth participants used a
smartphone application (app) to connect to the CHR. The intervention is designed to
facilitate better care and engagement between the patient and their care team.
Collaborative Health Record (CHR)
TELEPROM-Y app
Measures
Measures included a demographic questionnaire, the Community Integration Questionnaire [10], Lehman’s Quality of Life [11], EQ-5D, health and social services utilization, and Likert scales assessing perception of technology, a researcher-developed
questionnaire that inquires about participants’ attitudes and opinions of the smartphone
provided, provided data plan, and the CHR. Common qualitative items included
feedback from participants on what they do and do not like about the technology, as
well as suggestions for improvement on ethical principles such as autonomy, privacy
and beneficence. A thematic analysis [12] using an ethnographic [13] method of
analysis will be used to observe the broader social and cultural contexts surrounding
individual experiences as well as the impact on staff/care providers and how the
intervention influenced their practice.
212
C. Forchuk et al.