70 Kelly Bannister
endorsed by researchers and the ethics of “right relationships” embodied in
First Nation, Inuit and Métis traditional teachings.
(Brant Castellano, 2008, p. 23)
TCPS2 and Consent in Indigenous Research
TCPS2 Chapter 9 is described as a “framework for the ethical conduct of
research involving Indigenous Peoples” and “is not intended to override or replace
ethical guidance offered by Indigenous peoples themselves” but “to e nsure, to
the extent possible, that research involving Indigenous peoples is premised on
respectful relationships” (Canadian Institutes for Health (CIHR) et al., 2018,
p. 107). TCPS2 Chapter 9 focuses on four primary means to implement the core
principles and to address requirements for free, informed and ongoing consent.
These include community engagement, collaboration, research agreements and
community customs and codes of research practice.
Community engagement – TCPS2 Articles 9.1 through 9.6 provide
detailed guidance on requirements for community engagement, which is defined
as “a process that establishes an interaction” that “signifies the intent of forming
a collaborative relationship between researchers and communities” (Canadian
Institutes for Health (CIHR) et al., 2018, p. 110). Community engagement is
required when “research is likely to affect the welfare of an Indigenous community, or communities to which prospective participants belong” (Canadian
Institutes for Health (CIHR) et al., 2018, p. 112), for example, if research takes
place on Indigenous lands, includes Indigenous identity as criteria or involves
documentation or interpretation of Indigenous cultural heritage, artifacts, traditional knowledge, language or history. Community engagement is required for
both primary collection of research data and secondary use of information that
was originally collected for another purpose.
Community engagement is understood as an upfront process that may take a
variety of forms, depending on the circumstances, the nature of the research and
those involved. For example, community engagement may include:
review and approval from formal leadership to conduct research in the
community, joint planning with a responsible agency, commitment to
a partnership formalized in a research agreement, or dialogue with an
advisory group expert in the customs governing the knowledge being
sought.
The degree and type of collaboration may vary, from “information sharing to
active participation and collaboration, to empowerment and shared leadership of
the research project”, including the possibility of a community choosing not to
engage but to indicate no objection to a research project (Canadian Institutes for
Health (CIHR) et al., 2018, p. 110).
endorsed by researchers and the ethics of “right relationships” embodied in
First Nation, Inuit and Métis traditional teachings.
(Brant Castellano, 2008, p. 23)
TCPS2 and Consent in Indigenous Research
TCPS2 Chapter 9 is described as a “framework for the ethical conduct of
research involving Indigenous Peoples” and “is not intended to override or replace
ethical guidance offered by Indigenous peoples themselves” but “to e nsure, to
the extent possible, that research involving Indigenous peoples is premised on
respectful relationships” (Canadian Institutes for Health (CIHR) et al., 2018,
p. 107). TCPS2 Chapter 9 focuses on four primary means to implement the core
principles and to address requirements for free, informed and ongoing consent.
These include community engagement, collaboration, research agreements and
community customs and codes of research practice.
Community engagement – TCPS2 Articles 9.1 through 9.6 provide
detailed guidance on requirements for community engagement, which is defined
as “a process that establishes an interaction” that “signifies the intent of forming
a collaborative relationship between researchers and communities” (Canadian
Institutes for Health (CIHR) et al., 2018, p. 110). Community engagement is
required when “research is likely to affect the welfare of an Indigenous community, or communities to which prospective participants belong” (Canadian
Institutes for Health (CIHR) et al., 2018, p. 112), for example, if research takes
place on Indigenous lands, includes Indigenous identity as criteria or involves
documentation or interpretation of Indigenous cultural heritage, artifacts, traditional knowledge, language or history. Community engagement is required for
both primary collection of research data and secondary use of information that
was originally collected for another purpose.
Community engagement is understood as an upfront process that may take a
variety of forms, depending on the circumstances, the nature of the research and
those involved. For example, community engagement may include:
review and approval from formal leadership to conduct research in the
community, joint planning with a responsible agency, commitment to
a partnership formalized in a research agreement, or dialogue with an
advisory group expert in the customs governing the knowledge being
sought.
The degree and type of collaboration may vary, from “information sharing to
active participation and collaboration, to empowerment and shared leadership of
the research project”, including the possibility of a community choosing not to
engage but to indicate no objection to a research project (Canadian Institutes for
Health (CIHR) et al., 2018, p. 110).