68 Kelly Bannister
conveyed in the consent process” be left with the participant as “evidence that
they have agreed to participate” and a reminder of what they agreed to at that
moment in time.
TCPS2 and Indigenous Research
TCPS2 (Canadian Institutes for Health (CIHR) et al., 2018) also contains a 28page chapter on Indigenous research (Chapter 9: Research Involving the First
Nations, Inuit and Métis Peoples of Canada) that was informed by a technical
advisory committee called the Panel on Research Ethics-Technical Advisory
Committee on Aboriginal Research (PRE-TACAR).
8 PRE-TACAR did not
explicitly recommend using the term FPIC in TCPS2 Chapter 9 but framed the
requirement for collective and individual consent as one of several fundamental
elements necessary for ethical research involving Indigenous peoples, e specially
noting the importance of “group interests and the risk of doing harm due to misunderstanding of cultural norms” (Aboriginal Research Ethics Initiative (AREI),
2008, p. 6). Ethical research was situated within the underlying value of Respect
for Human Dignity, which was understood as also implying “respect for diversity within and among [Indigenous] communities, for Indigenous knowledge
systems, and for [Indigenous] cultural heritage” (Aboriginal Research Ethics
Initiative (AREI), 2008, p. 9).
TCPS2 Chapter 9 (Canadian Institutes for Health (CIHR) et al., 2018) interprets the three core principles of TCPS2 in Indigenous contexts and tunes the
reader’s understanding to the concerns and considerations in research involving
Indigenous peoples, as follows:
Respect for Persons – is primarily expressed and implemented through a free,
informed and ongoing consent process, and ethical protections are needed
beyond the scope of the individual to “address concerns of First Nations,
Inuit and Métis for their continuity as peoples with distinctive cultures
and identities” (Canadian Institutes for Health (CIHR) et al., 2018, p. 111).
Thus, ethical protections must “extend to the interconnection between
humans and the natural world, and include obligations to maintain, and
pass on to future generations, knowledge received from ancestors as well
as innovations devised in the present generation” (Canadian Institutes for
Health (CIHR) et al., 2018, p. 111). Abiding by codes of research practice
developed by Indigenous communities themselves is indicated as a primary
tool for this purpose.
Concern for Welfare – is understood as broader than the well-being of
individuals, “requiring consideration of participants […] in their physical,
social, economic and cultural environments […] as well as concern for the
community to which participants belong”, and recognizing the “important role of Indigenous communities in promoting collective rights, interests and r esponsibilities that also serve the welfare of individuals” (Canadian
conveyed in the consent process” be left with the participant as “evidence that
they have agreed to participate” and a reminder of what they agreed to at that
moment in time.
TCPS2 and Indigenous Research
TCPS2 (Canadian Institutes for Health (CIHR) et al., 2018) also contains a 28page chapter on Indigenous research (Chapter 9: Research Involving the First
Nations, Inuit and Métis Peoples of Canada) that was informed by a technical
advisory committee called the Panel on Research Ethics-Technical Advisory
Committee on Aboriginal Research (PRE-TACAR).
8 PRE-TACAR did not
explicitly recommend using the term FPIC in TCPS2 Chapter 9 but framed the
requirement for collective and individual consent as one of several fundamental
elements necessary for ethical research involving Indigenous peoples, e specially
noting the importance of “group interests and the risk of doing harm due to misunderstanding of cultural norms” (Aboriginal Research Ethics Initiative (AREI),
2008, p. 6). Ethical research was situated within the underlying value of Respect
for Human Dignity, which was understood as also implying “respect for diversity within and among [Indigenous] communities, for Indigenous knowledge
systems, and for [Indigenous] cultural heritage” (Aboriginal Research Ethics
Initiative (AREI), 2008, p. 9).
TCPS2 Chapter 9 (Canadian Institutes for Health (CIHR) et al., 2018) interprets the three core principles of TCPS2 in Indigenous contexts and tunes the
reader’s understanding to the concerns and considerations in research involving
Indigenous peoples, as follows:
Respect for Persons – is primarily expressed and implemented through a free,
informed and ongoing consent process, and ethical protections are needed
beyond the scope of the individual to “address concerns of First Nations,
Inuit and Métis for their continuity as peoples with distinctive cultures
and identities” (Canadian Institutes for Health (CIHR) et al., 2018, p. 111).
Thus, ethical protections must “extend to the interconnection between
humans and the natural world, and include obligations to maintain, and
pass on to future generations, knowledge received from ancestors as well
as innovations devised in the present generation” (Canadian Institutes for
Health (CIHR) et al., 2018, p. 111). Abiding by codes of research practice
developed by Indigenous communities themselves is indicated as a primary
tool for this purpose.
Concern for Welfare – is understood as broader than the well-being of
individuals, “requiring consideration of participants […] in their physical,
social, economic and cultural environments […] as well as concern for the
community to which participants belong”, and recognizing the “important role of Indigenous communities in promoting collective rights, interests and r esponsibilities that also serve the welfare of individuals” (Canadian